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Tuesday, July 22, 2008

Owain is OK for now

Well his O2 levels are still low, but they did spend a bit more time in the lower 70s today at the hospital. They did an EKG and an Echo and everything looks good. His usual cardiologist is out this week & he saw another Dr, so I don't really have any answers. She told me that they would get back to me early next week when they decide when they are going to perform the catheter procedure. The have to go in through an artery and check his heart out. It is possible that they are going to be doing this in the next few weeks, but hopefully closer to the end of August. How his heart looks at that point will determine when he will have the Glenn procedure, which is the next open heart surgery. It could be as early as the day after they do the catheter procedure or a month so after that.

I kind of get the feeling that they are waiting until he gets to a certain size & weight before they schedule the next surgery. She didn't say so exactly, she just said that they are going to want him to be at least 6 kilos before they operate. He is around 5 1/2 maybe a bit less, I don't remember now.

So for now I don't have any answers, which is really frustrating, but it looks like this is the beginning of getting ready for his next surgery.

....and I KNOW I still have to get some more pictures posted for all of you! It's on my list for tomorrow, I promise, does that make you feel better lol :)



Taking Owain to UVA today

So if you didn't see yesterdays post, read that first and then come back up here to read this one.

His O2 sats are still low again this morning and his pediatric cardiologists want to see him this afternoon. They are in the 61 to 72 range, mostly in the mid 60s.

Wing Nut and E Nut are a 1/2 hour in the other direction at summer art camp & I need to pick them up & take all the boys with me.

There is something wrong with my cell phone & I have not been receiving my incoming calls. I know for a fact that I have missed about a 5-6 calls just this morning! Ntelos said to just bring it in & they will update my phone, but if I don't get to it this morning I might not get your calls if you try calling.

I will post here how things turn out tonight.



Monday, July 21, 2008

This is Soo not what I wanted to post about Owain, but

I have been hoping to get some more pictures of Owain posted here, but the day keeps getting away from me. He is getting bigger, smiling, babbling. He is a happy little guy & he loves to laugh & has finally become ticklish...I love to tickle my little beastie boys! Everything healed well, and he doesn't seem like he is in any pain when I grab him under his arms. He is strong & can hold up his head and look around, he even follows me with his eyes as I walk across the room.

He was doing really well for a while, but now I am starting to get nervous.

When Owain came home his oxygen levels were in the low 80s to high 70s. For the past few weeks they bounce from the low 70s to the low 80s & occationally drop into the 60s. Normal blood oxygen is 97-100%. When he was cyanotic & sent to UVA he was at 42%.

The last time he had a peds cardiology appointment I asked, what are the numbers to watch out for when things start to look bad. They say when he is consistently in the 60s. For the past 3 days he has been in the 62-70% range.

They also said that if it happens too soon before he is old enough they will have to do an extra open heart surgery to put in a bigger shunt & then still do the next procedure in Sept or Oct.

I sent his oxygen levels to his patient care coordinator & I am just waiting to see what she says. I am starting to get really scared.

I always have a candle lit for him, if you get a minute please light one so that his O2 levels go back up.



Saturday, July 12, 2008

I found a new feature on the candle site!

After writing the article How to Light a Candle Online to Pray for a Loved One I contacted Gratefulness.org to let them know. They told me that there is a way to create an entrance page just for Owain's candle. I just did it & it is pretty cool!

So here is his new entrance page: Light A Candle for Owain



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