He actually came home last Thursday May 29th!
We have been getting settled, going to different Dr visits and trying to get some rest. The kids are so excited to have him home. It was very strange for them to be with out their parents for so long. They were just as disappointed every time his discharge got pushed back as we were. His incision is a bit infected, about a half inch or so...at the very top. It is pretty common because babies pull at the bandage & irritate it & when they eat they drool milk on it or spit up on it. He is on some antibiotics for that & it is much better than it was last week. He is still on a few meds, not to much & nothing major.
He is doing really well and loves to be around his family!
I have been so busy catching up with everything since he got home & have had a hard time making it to my computer. And of course my computer had to crap out on me last weekend & I spent too much time getting it working again. Now we are getting these crazy thunderstorms & tornado warnings & my computer is pretty much turned off most of the day.
And the foundation for our back addition is finally done, so no more excavation equipment in our back yard! Whew, I am glad that is over...What a mess! I got a few pictures of that, but I will have to get them downloaded some other time.
We are so thankful for all the meals that are coming our way! It is such a huge help! I have been trying to clean my house for days & it still looks like a tornado actually hit our house LOL! What a mess!
I also lit a new candle for him
This time from now until he has his second surgery is going to be the most critical time. We have to watch his oxygen levels & monitor them every day. He will grow so fast that he will soon outgrow his first surgery. When his oxygen saturation starts to drop he will go back in for a catheter procedure to check on his arteries & then he will be scheduled for his next surgery. The first one was called a BT Shunt & the next one will be the Glenn procedure to route all of his blood coming down from his head directly to his lungs. Another reason, aside from his growth, that we have to watch him so closely, is that he could get a blood clot on the shunt...which is a gortex tube. He is taking aspirin as a blood thinner to reduce the risk of clotting.
...So I lit another candle for him...I started a new group, named Owain, because there were lots of different families lighting candles who had some one in the family with Heart Disease or Congenital Heart Defects & I wanted a candle just for him...
Thank you so much to every one who has sent gift cards, food, $$, activities, books & games for the kids, mom gifts for me, prayers, cards, support & love!! I really can't thank you enough or tell you how much it means to us!