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Tuesday, October 21, 2008

Owain is home :)

I know I should have posted hear sooner, but I haven't had more than a minute or two to try to sit down at the computer.

Owain came home last Wednesday, October 15th. It is amazing that he was only in the hospital for a week and a day after having major bilateral open heart surgery!! He is such a happy guy, you would never know what he went through just 2 weeks ago, he is my hero. We still have to be extra careful when we pick him up & can't pick him up under his arms for another 1 1/2 months, but he loves to sit up on my lap & hang out, like nothing ever happened. Babies are so resilient!

He is finally getting his appetite back & is almost eating as much as he was before surgery. He is also on no pain meds, just a bit of Tylnol when he gets too fussy, which he doesn't do often any more. Mostly he just wants to be attached to me at all times, I swear he is like velcro LOL. I call him my little cling-on.

Pretty much as soon as he came home we all got sick & except for taking care of the kids...a few of whom had to take care of themselves...I have been trying to recover on the couch & pretty much had to tie Milio to the couch so he wouldn't go out & work on the addition.

I have one picture of him in the hospital & one a few days before his surgery. Enjoy!!

We have a follow up appointment at UVA this afternoon, so that is all I have time for now, but I thought you all deserved to hear from me & see some new pictures of my little guy!

Thanks for all your prayers & support! (((big hugs)))

Thursday, October 9, 2008

Owain is recovering slowly

Owain is still in the PICU. We were hoping that he would be out on the floor by now, but his lungs and a high fever have been keeping him here. His fever has been dropping most of this evening. He has some fluid both in his lungs and around his lungs, so his oxygen has been lower than everyone was hoping, but it is still higher than before his surgery. We spent today trying to figure out if they were going to have to add a drainage tube to clear the fluid from around his lungs, but as of now we are waiting to see how things go and we will find out tomorrow after a few more chest X-rays. It seems like he has a bit of a cold that is junking up his lungs.

He was soo cranky yesterday morning, but as gotten less cranky today. He was also really swollen yesterday, but it looks like most of the swelling has gone down and he looks great. He is pink and has lost that dusky gray blue tint that he has had for the past month, it is hard to believe that he just had open heart surgery, you would never even be able to tell by looking at him.

His issue tonight seems to be his blood pressure, it is going up and down and alarming at both the high and the low settings.

He slept for most of the day and started to eat much more tonight.

Already it looks like we will be here for at least another week or more. I was planning on at least a week, and was hoping everything would work out. We finally got a private room tonight, so I can spend the night in the room with him.

Thanks for all your prayers for Owee (((hugs))) to you all.

Tuesday, October 7, 2008

Another Successful Surgery :)

Owain came out of surgery around noon today,Yippie! He is doing well. He still hasn't woken up yet & is still on a bit of pain killers. We are waiting for his pain meds to wear off and most likely they will be able to take him off the respirator early this evening. He was starting to wake up and wiggle around a little bit, but then they had to give him some more pain meds because he is not quite ready to come off the respirator.

I have been so nervous about this surgery and I am so glad it is over! He still has several months of recovery, but knowing this is behind us is such a relief, I feel like a huge weight has been lifted.

It does look like he is going to be in the hospital for about a week and I am prepared to stay here with him most of that time. He might even be able to move out of the PICU by tomorrow night or Thursday morning. He is in a shared room with two other cardiac babies, so I can't stay in the room with him overnight. We are staying in a hotel tonight, but I hope that he does well enough that he can move out to the Pediatric floor by tomorrow night so I can stay in his room.

I haven't been very hungry the past few days, but I am starving now. I am going to head down to the cafeteria and see if I can find something to eat, I could use a nap too!

Thanks for all of the lovely prayers and support.

If you want to light a candle for a his recovery, his candle page is still here

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