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Monday, August 25, 2008

Owain's Prayer Quilt

My second son E Nut has a friend from school who's mother gifted us with a Prayer Quilt for Owain. She and some of her friends from her church made it for him. It came with instructions that reads:

"Each knot tied represents a prayer that was said specifically for you. Notice that the yarn has been left long. This provides others such as friends, co-workers, and family the opportunity to pray for you and to tie a knot. We hope that this quilt will bring you comfort and peace."

There were 16 signatures on the instructions and I only recognize 1 of them, the other 15 were by her friends from church who I never met and most likely never will. It is so amazing that there are so many people praying for Owain, when I look at his quilt it warms my heart to know that there are more prayers for him than I will ever know. I feel so honored knowing that my son's Heart is in the hearts of so many.

Owain's next surgery is scheduled for Wednesday September 3rd, not sure what time yet though. It looks like it will be an early morning spot though. We wont know for sure until his pre-op appointment on the 2nd.

I realized yesterday while I was looking at my journal that you all have seen a picture of his Prayer Quilt, it is the one he is laying on in my last post. If you look close you can see that there is still room on many of the strings of yarn for more prayers.

I know that he has lots of love and prayers watching over him every day. I am going to be taking his Prayer Quilt to the hospital for his surgery. If you want your prayer to be a part of his Prayer Quilt, let me know and I will say your prayer for him while I tie the knot in his Quilt.

Well I am editing this post, because I just heard from UVA and I guess late last Friday Owain's cardiologist and his Dr that did the Cath procedure a few weeks ago got together and decided that he could wait to have his surgery. I feel like I should be more happy than I am now, but at the moment I am in the middle of an emotional roller coaster. I was getting ready, and now I don't have to, but I will have to get ready for it again next month, I just don't know when. I was already starting to get stressed about it this morning trying to get all of our plans with the kids & school and schedules and now I just don't know what to think.

Friday, August 15, 2008

Owain had his cath procedure today

Things went really well!

His heart looks good & he is a good candidate for the next surgery, but we are not in a rush, rush position any more. His doctor said that we might even be able to put off the next surgery until closer to the end of September instead of at the very begining. He only got a few pokes where they put in the cath & didn't do any incisions this time & and will recover pretty quickly. He was really mad for a while after the procedure, but after a few hours of good sleep he is back to being a happy little guy.

One thing that I didn't realize before is that he has an extra vessel that comes down from his head. His next procedure is the Glenn procedure, where they send the blood from his head directly into his main artery that goes into his lungs...he has two vessels so each vessel will go directly into a lung. The Glenn is normally one vessel that goes directly into the main artery that goes to the lungs. It means that the surgery will take much longer, because they are doing the procedure twice. It also means that the blood will be less likely to back up, because his blood does not go to his heart to be pumped into his lungs...(he does not have that valve) Gravity will just send the blood down from his head & into his lungs.

Anyways, that is just the quick story, I have to find out some more information on it so that I can better explain it. For now you will just have to enjoy this picture of Owain ;) He was so busy watching the Olympics that he wouldn't look at me.

Thanks for all the prayers sent to him, he was truely watched over. I could not have asked for a better outcome.

Friday, August 8, 2008

Moving forward with Owain's next surgery

I think I feel OK about this. I knew it was coming so I have been trying to prepare myself. Of course I am sad, I am worried, I am scared, but I am OK with it. It has to be done. At least I am TRYING to be OK with this.

We had an appointment with his cardiologist the other day and they think his O2 sats are low enough and he is big enough to start moving forward.

Friday they are going to be doing the catheter procedure. They will go in through an artery, probably in his neck and look around at his heart to see how much his arteries have grown and basically see how his heart is doing over all.

I thought that they were going to schedule his surgery based on what they found during the cath procedure, but they called this morning and we have the surgery scheduled for September 3rd.

I don't know the exact times that everything is scheduled, they sent out a package by FedEx that I should get tomorrow with all the times and everything else I need to know. I do know that they would like to get him in first thing on Friday morning for the cath procedure so that he can recover from the anesthesia and then come home Friday afternoon or evening. He will be in the hospital for about a week after the open heart surgery in September.

I know I have been a big slacker with the pictures, so I have a little bit of every one here for ya.

Wee Nut, Just last week.

Avery's second birthday
Little Nut Nut on his 2nd Birthday!

EJ loves his XBox Lego StarWars!
E Nut loves his video games!

Emil's 7th birthday
Wing Nut on his 7th birthday!

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