He has been in critical but stable condition for the past few days. We were excited when it was determined that an interventionist could try a cath procedures which is a less invasive procedure. That was scheduled for yesterday. The procedure was that they would go in through an artery in his neck or leg with a catheter and put in a stint that would direct the blood to where it need to to. Unfortunately the arteries around his heart are too twisted, very cork screw like and they were unable to the spot they need to get too.
That was overwhelmingly disappointing. I completely put it out of my head that it wouldn't work, not wanting to put any negative energy out there for the universe to pick up on. If this would have worked he would be off the respirator now & home by the end of next week.
So far every scenario that they have given us of anything that could happen, little Owain has always had the worst case. He just seems to be a difficult little guy. Through everything though it has been said over & over that one thing that has helped him is the fact that he is so big. I really believed throughout my pregnancy that he was going to be born around April 15th & even if he was born on the 25th which was his due date he would have been much smaller. He was the most difficult to deliver & I was running out of energy in the end because he was do big. It is such a good thing that he stayed in my belly for as long as he did because it makes him so much stronger than most cardiac babies.
He is scheduled for Tuesday May 13th to have open heart surgery. This is absolutely terrifying to me & I am having a really hard time holding it together. When I think of what they need to do it just breaks my heart that he has to go through this. Once again I am so thankful that I live so close to UVA and that Owain has the best care possible. I am also thankful that I my parents were here for the birth & that they are able to take care of my older boys and that I am able to come home to see them every night.
We still don't know what time the surgery is going to be, they will let us know on Monday when they work though their schedule.
He is slowly recovering from his procedure yesterday. His stats are a little off, but they have improved quite a bit throughout the night.
Hopefully I will be able to get back here to my journal to let every one know the exact time of his surgery on Tuesday so that every one can be thinking about him & praying for him.
Thank you so much for all of your support! Thanks for all of the gas cards, food and offers for baby sitting my kids. Thank you for your prayers & for your support I love you all so much.